@Decadian - yes my mums conditions are different from yours. And often - hidden. But then it sounds like your specialist doesn't get yiur level of pain either.
Pain is hidden - in as much - as no one can see our pain. And some are better at masking pain than others.
I was saying to zoe today - when my mental health isn't good - my tolerance for physical pain is almost zero. And then because I'm in pain - my depression gets worse. It's a viscous cycle.
Can I suggest you 'play up' your pain at your next appointment. Say you fell - or almost fell - and it's made the pain ten times worse.
You shouldn't have to do this if course - but when your specialist - the person in control of your pain meds - isn't listening to you - maybe it's fair to 'play' it up.
I remember your ladt appointment - & the specialist didn't listen to you then.
So - do what you need to.
My sister is worried about my mums increase in pain meds. So am I. But then - I don't feel her pain. And I don't want her to suffer any more than she needs to. So why not let her increase her dose on a bad day.