Am Not Coping

[Faith-and-Hope]

Love it @Zoe7 ...... happy tears here ...... 💜💜💜

Have been looking for a butterfly, but haven't found the right one yet .....

[Zoe7]

Waiting at my GP'S. pdoc appointment went okay - another med increase and back next week. My gp to monitor the increase until then. Still need to struggle through the nights but need to continue the gradual increase in case of side effects. Told her how very hard the nights still are - really don't think pdoc or gp have any real idea. Feel a bit like I am talking to a wall sometimes. I suppose unless you have struggled so much for so long, like I have, it is hard to grasp the enormity of how hard it is 😔

[Bubbles3]

hi @Zoe7

[Former-Member]

@Zoe7you are not talking to a wall hun I understand and hear you. But you are right that is is hard to grasp unless you have/are going through it. Sitting with you 

[Faith-and-Hope]

We will be here with you @Zoe7 .... and we hear you ..... 💚💐💕

[Zoe7]

@Faith-and-Hope I'm glad you like the necklace (still looking for an R ) but found that rose at the market and thought it was a good substitute for now 

Hi @Bubbles3 

@Former-Member I know you get it - I just wish my gp and pdoc really did too. I can explain what it is like (the best I can) but both of them hoping the med changes/increases will EVENTUALLY help does not help me now - and NOW is when I need it. I try to explain that the days and nights are polar opposites - I can get through the daytime ok but the nights are excruciating. Even when I do get some sleep it is only a few hours at a time - and even if I don't have nightmares or flashbacks the actual 'getting to sleep' part is sooooo difficult. I know they have not experienced what I have (and thankfully most people haven't) but I wish they actually 'got' how each night is so hard that it often, literally, comes down to just surviving.

[Former-Member]

@Zoe7understand hun and am here for you. Hope all went well.

[Faith-and-Hope]

Are you home and resting now @Zoe7 .... ?

Fluff-ball beside you ?

[Zoe7]

Yes home now @Faith-and-Hope. Your niece is already whinging for her dinner and the fluffball is laying on the floor - looking at her and then looking at me, wondering why she is being a pest

I'm just tired. Don't feel up to doing anything this afternoon - even picking up Toby's toys!

@Former-Member I can't say anymore than I already have to my gp and pdoc. I know I have to wait and see if the med increase has any affect tonight but not hopeful at this stage.

[Faith-and-Hope]

I hope the changes do make a difference @Zoe7 ..... there will be a “tipping point” with them where the meds reach maximum effectiveness, so nearing that point might suddenly make a difference.  I hope so .....